Today’s blog is about several actions taken this morning. First, it is Wednesday, so I needed to replenish my Ready Service Locker (RSL) with a week’s worth of Cycler dialysate bags and cassettes. From our bulk storage in our spare bedroom closet, I moved 7 cassettes, a 4-container box of 1.5% dialysate, a 4-container box of 2.5% dialysate, and 4 boxes of 2 in each box of 5 L 1.5% dialysate. See the photo below. I had already stowed one box of the 5 L dialysate when I took the photo.
Fresenius Medical provides an adequate albeit somewhat slow App named “PatientHub” for PD patients to use to communicate with their teams, order supplies, enter biometric information, and a host of other activities. I recently reported that the Hub->Menu->Vitals Graphs path was not working. Furthermore, I received guidance from a Fresenius Rep that it only worked if you entered your biometric data into the app itself. Additionally, I came to find out that my team members rely on biometric data being entered into the Cycler which is then also entered into the USB drive inserted into the Cycler which I sneaker-net into the team periodically. If I did not enter data into the Cycler, my team would not receive the data. If I do not enter the data into the app the Vitials Graph function is inop. I figured out a way to solve this dilemma via the app by lying to it that I had not entered any data into the Cycler although I had, which brought up a biometric data entry screen into which I entered data daily. It worked and now the Vitals Graphs portion of the App is useful – to some extent. Below are examples of the App itself on my S20 Samsung phone, the data entry screen, and screenshots of the data graphs, with the timeframe set to 7 days. A 30-day option is also available. I also used the App to order supplies this morning.
Tomorrow we’ll journey back to the diabetic side of PD and discuss the tools I use to monitor my Glucose levels and also A1c levels. Stay tuned.
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