Print 🖨 PDF 📄 eBook 📱

But first going Forward: a bad night for me and Peritoneal Dialysis. The system would just not drain, regardless of where and how I stood, what dance steps I made or how I held my mouth. The Cycler persisted on sounding its loud “Draining slowly” warning, of course with no reflection on what was causing the slowness. I checked and rechecked both the Drain Line (yellow) and the Blue is You Line to no avail. I removed all tape and fixtures on the Catherer Line, and gently tugged the Catherer Line itself to no avail.

On average over six months, the total time I spend on the Cycler itself is on the order of 10 hrs 30 minutes; last night it approached 11 hrs, an all-time high. For the record, 3/4 nights the Cycler alarms on the Drain Cycle; only 25% of the time do I experience a restful night’s sleep without Drain Alarms.

Expecting that something was just not as it should be, I contacted my PD Nurse at Fresenius. She gracefully agreed to see me as soon as I could get there, some 1/2 hour drive away. Upon arrival at the Fresenius Clinic, she manually drained my PD Access, then added 500 mL of fluid and timed how fast it went in (fill) and how fast it Drained. She then did so with 2000mL. In both cases, specs were exceeded. (She used 100 mL per minute for the drain as the norm, so 20 minutes was the time expected.)

So available tests suggested my PD catheter system is performing to specifications. I am to suit up again tonight with hopefully better results. If not, the next step would be to x-ray my stomach area to ascertain if all is as should be with the catheter interior to my stomach.

BTW, while there I asked about replacing the line on my catheter that leads from the section that actually enters the stomach to the Blue is You connect on the Cycler and was told that this is accomplished every six months as a matter of course. Stand by for updates.

Now an update on how data moves around Fresenius or doesn’t. Clinic personnel do not have a live feed of data coming off the Cycler even though the Cycler has a cellphone-based modem to transmit data. They received stored biometric data when I visit the clinic and bring in the installed USB thumb drive. They can see and respond to any comments I make via the App, but it is unknown how much if any of the other data they can review.

`

Fresenius is touting a new integration of data sources and support via their Kinexus Therapy Management Platform as being specific to both the Liberty Cycler (the current PD device I’m using) and the new-to-the-world VersiPD system in early beta testing I have previously blogged about. See this link for more information. You may view an embedded video from the above link that is embedded below. It seems to take a few seconds to load – maybe.

The Kinexus rollout suggests Fresenius recognizes they need to improve their data integration efforts and lever up on the data they are by default collecting on patients. I’ll post updates as my understanding in this area improves.